Still no answers

Still no answers on my hip. Traveled all the way up to Indy, 4 hour drive one way and left with ZERO answers! He was dumbfounded and wants more tests. This time a lovely 2 hour MRI with a large needle inserted directly into my hip joint that injects dye and lidocaine, then a consult with him a few hours later to see what it showed. Not holding much faith on this. After you have been through as much as I have, you lose all hope that anything will ever get better :( Sad, but true. So there's the update. I go back March 18th and will update then.

Neurofreak

I am officially a neurofreak. I was just dx with Trigeminal Neuralgia by my dentist. Still have to see a NL for N "official" dx but the dentists are usually the first to see patients with this b/c people believe it is a problem tooth. Had the full xrays, they spend 45 mins today doing every test you can imagine to try and prove it was a tooth. Errr, wrong. 1 in 15,000 get this so it's pretty darn rare considering Chiari is "rare" with only 1 in 1,000 having it...

This is also known as the "suicide disease" b/c it has such a high suicide rate due to the severe pain it causes. Great, right?

I just got back from a recent trip to a specialist 4 hours away for another "rare" condition with my hip. 2 surgeons and yet no one knows what the exact problem is. Going back in a few weeks for more tests. A MRI with a needle inserted directly into my hip joint and they inject dye straight into the hip joint OUCH!

Here is some more info on TN: http://en.wikipedia.org/wiki/Trigeminal_neuralgia

So hi there, it's me neurofreak.